KINGSTON SHIRT
BLACK
Wednesday, September 7, 2011
september 7, 2011
I don't really have any exciting news today but since I haven't posted a blog since July 4th I thought it was time. :) Not sure where to start, Kingston has been making a lot of improvement the past couple weeks with his gross motor skills. He is still pretty delayed but I think with a lot of hard work and serious time working with him we will get there. He is doing so much better reaching and being on his tummy with keeping his head up. I am now concerned mostly about his speech. He is still not saying any consonants yet and it worries me. I'm trying to be patient but I wish he would just say one word so that I know he can. He's good at mimicking me with sounds but where are the words? I am also concerned about his feet. He wants to push his feet out and keep his toes curled. The physical therapist mentioned orthopedics might help. Not sure if I should be doing something else. Should I take him to see an orthopedic specialist? Is it something he will grow out of? What to do about that...I don't know. We are going to start Physical Therapy in an outpatient office on the 13th. We are going to try this twice a month. It is pricey but I feel we need to get more aggressive and I'm hoping it is short term. We are also going to have early intervention start coming to our home two or three times a month to work on P.T. too. I'm hoping to try both and cut back after a month. See which one is helping the most. It sucks doing both but I want to make sure we are doing what is best for him and I don't know any other way than to try them both to decide. The first P.T. bill came though. $70. I hope that all of them are not that expensive. All these little things add up. I am truly grateful for him and I know we are so lucky that he has not had any major issues but all these "little issues" add up and it gets overwhelming when I dread to get the mail because I know there will be some little "$100" bill for something or other. I feel guilty for being so frustrated because I know how blessed we are but it's hard and I wish it were easier. There I said it. I try to stay positive and not let things worry me that are not things I need to worry about yet but it's hard. Being a preemie mom is hard. The bills are never ending, the physical therapy, the doctor visits, the worries about development and wondering what it could mean, sometimes I just want to say AHHHHH enough already. But then I see my sweet baby boy and he looks at me and smiles with that twinkle in his eyes and his big dimples and his toothless grin and I am just so HAPPY and so thankful that he is here and in my life and making it so much better.
Monday, July 4, 2011
Kingston's First Birthday
Today we celebrate the soldiers who have fought for our country and our freedom, today I also celebrate my little soldier who has fought for his life. Today is a day for celebration!
Kingston is 1 year old today and weighs 13 1/2 lbs. While that seems very small, he's gained 12 lbs in 12 months and I think that is pretty darn good! He has beat so many odds that were against him and has overcome so many hardships and battles. He is my little fighter. He has taught me so much! He is strong, loving, happy, and has the sweetest spirit! He has brought our family so much joy!
He had eye muscle surgery on Friday and it went very well. We are so blessed to live in a country with so many great resources and doctors. It was hard to see him in pain but he handled it so great. He is one tough little guy. As a parent you want to protect your baby from any pain and I would have given anything to be able to go through it for him instead of have to watch him go through it and I think that is how God feels. It would be much easier to take your childrens pain from them, then have to watch them go through it, but you know that is not possible and that this is something they must overcome and you have to watch, be supportive, be there for them, bring them comfort, and when it has passed, you realize this was something they had to go through and that they will be stronger for it. Kingston is so brave and strong and the trials he has faced and continues to face make him who he is. They are a part of him. He is such a great example to me to never give up no matter how bad things may look or how bad things may get. You have to take them one day at a time, sometimes hour by hour, but if you never lose faith and hope and continue to pray, you can get through them. God Bless America today and God bless the preemies! :)
Friday, July 1, 2011
Kingston's first hike
Monday, June 13, 2011
June 13, 2011
So another two months have flown by. We are now in our new house in Canyon Rim and I absolutely LOVE it! Kingston is going to be a year old in 3 weeks! Hard to believe I had him almost a full year ago. He's still in 3 mo clothes and newborn shoes. He weighs 13 lb 2 oz. We went to the eye Dr. on Wednesday and found out that King has to have eye muscle surgery on both his eyes on the 1st of July. Boo! Sometimes a second surgery is needed but i'm hoping we can take care of it with the first and be done! He has to wear little eye patches every day for two hours up until the surgery to strengthen each eye. He doesn't like it when we first put it on, but he gets used to it and doesn't mind it too much after a few minutes. He's such a good little baby. He is sitting all by himself now and doesn't mind being on his tummy anymore. He LOVES fruit but thinks veggies are just ok. I think he has my sweet tooth.
We were in a preemie parade on Saturday. It was a never never land theme and they were suppossed to dress up like their favorite Peter Pan character. Most the little girls were tinkerbell and the little boys wore their pjs. Kingston was the crocodile and had a little clock sticker on the end of his pacifier. They also had posters of why they were in the parade. Kingston's looked like an American Flag since he was born on the fourth of July. It was cute. :) His little preemie friends met him there. It was great to see them!
Tuesday, April 5, 2011
April 5th, 2011
Man, I just realized I haven't posted since January, what a slacker I am!!! So Kingston is rolling over now and eating solids and it's so fun! He also loves to stand. (holding my fingers) We are getting close to sitting but he leans to either side so we don't have that quite down yet. We went to the Dr. yesterday for a 9 mo. check up and he is still so small! He weighs 12 lbs and is 22 1/2 in long. We need to fatten that kid up! :) His little 3 mo. old buddy Bergin has atleast 2 lbs on him! Other than his small stature, our Dr. told us he is right where he should be developmentally for his corrected age. (5 1/2 mo.) It is so wonderful to think how far he has come and the progress we have made! It seems so long ago now that we were in the NBICU. It's crazy to think he will be a year old in just 3 months!!! Where does the time go? :) We removed Kingston's mic*KEY button a few weeks ago. Now there is just a scar where his tube once lived. It closed up so Fast! I checked a couple hrs later after we took it out and it had already closed) I met up with some of my friends that I made in the NBICU the other day because one of our friends babies is in the hospital with RSV. SO SCARY!!! I thought we were in the clear, but she just got admitted the Saturday before last and she's a month and half older than Kingston. She was transferred to Primary's when one of her lungs filled up with fluid. She is doing better now, but it was so hard to see her on CPAP again and in a hospital bed. I hope she gets to go home soon and I'm keeping her family in my prayers. I just kept thinking when I was up there, that could be Kingston lying there. We have been really lucky to not get sick yet this winter but it can happen so fast and knock them on their feet for a really long time. I was reminded how fragile their little lungs still are. I am so greatful for the friendships that I made through my whole NBICU experience, especially my other 24 week moms! Even though all our struggles are different, we have either experienced, been threatened with, or could still experience similar situations and we can relate to each other and be there for each other. I LOVE YOU GIRLS more than you will ever know, I could have never gotten through this without you. You are my rock and inspiration! love, Amber
Wednesday, January 5, 2011
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