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Wednesday, September 5, 2012

September 5, 2012

I just read the last post I wrote in September last year...and man was I having a bad day!  Sad that that was the last time I wrote anything.  Today's entry will hopefully be much more positive!  I am so greatful for my sweet family!  Kingston is doing so awesome!!!  And although I still worry about things and he's still a little delayed, he has come SUCH A LONG WAY!!  and is progressing so well and I'm not crazy worried anymore...he is going to be just fine and we are so blessed!

Now I worry about normal mom things...please don't hit the baby, please don't drag the dog across the kitchen, quit throwing tantrums, please don't climb on that, can you just sit still!!  I definitely have a 2 yr old!  :)  ...and I LOVE it!!

Kingston started crawling on Valentines day...of course he would do it on a holiday...that's the way he is!  We were in Vegas and I made a trail of m&m's  (motivation) and he just kept crawling to eat them...it was adorable! Our next goal after that was walking...I wanted more than anything for him to walk by his second birthday and a couple weeks before sure enough he was doing it!  LOVE that little guy!  I couldn't be more proud! He was walking on the insides of his feet though which had us a little worried.  We took him to a friend of ours who is a foot doctor...for adults, and she thought he would need surgery on both his feet.  She advised we get him checked out and do it right away.  I was thinking, he's finally walking and now he will be in casts and have to learn to walk all over again!  We tried to make an appointment but of course everything was a couple months out.  He had these little orthodics so we just made sure he had them on ALL the time.  They really helped straighten his feet out and he walked fine with them.  When we went to see the foot doc, they took x-rays and let us know he was just fine and his muscles were just a little tight but that he didn't need surgery.  As a mom you spend so much time worrying about your babies...and really you shouldn't worry about the what ifs but focus on the right nows.  Nice advise...wish I could take it myself.  HA! Now he doesn't even need the orthos and he's running and climbing and just the greatest little boy in the world!  (when he's not being a little monster!) :)

We're still doing the PT and Speech therapy but I think we're almost finished with the PT.  He's really caught up fast and is doing so awesome.  He doesn't say many words (like that's a bad thing?) so we taught him some signs and he picked up on those so fast...we need to learn more words to teach him.  He says please, thankyou, more, help and all done in sign. Speaking- He says mama, dada, yah, no, doggie, and ruff, ruff mostly...a few randoms here and there.  He knows most of his body parts in both portuguese and english and understands both languages when we ask him to do things.  It's so fun watching him learn new things!  He loves to give kisses and blow kisses and say hi and bye to people.  He LOVES attention...(where he got that from I don't know???) -HA!  He LOVES everyone he meets and has such a big personality!!!  He is about 28" tall and weighs about 18 lbs.   He loves his mommy, daddy, nanny (Lu), his 2 puppies, his blankeys...which he has 7 of and had to hold them all in the morning and take them to breakfast with him, and his pacifier (I know I know, I should probably ween him off it but he just loves it so much and I'm just not ready to) He LOVES Peanut Butter...I think he would eat it on everything!  Some of his favorite foods are eggs, pb sandwiches, pancakes with PB, oatmeal with PB, fruit, yogurt, CHEESE (this is all he seems to want lately) milk, chicken nuggets, goldfish and Z bars. 

Wednesday, September 7, 2011

september 7, 2011

I don't really have any exciting news today but since I haven't posted a blog since July 4th I thought it was time. :) Not sure where to start, Kingston has been making a lot of improvement the past couple weeks with his gross motor skills. He is still pretty delayed but I think with a lot of hard work and serious time working with him we will get there. He is doing so much better reaching and being on his tummy with keeping his head up. I am now concerned mostly about his speech. He is still not saying any consonants yet and it worries me. I'm trying to be patient but I wish he would just say one word so that I know he can. He's good at mimicking me with sounds but where are the words? I am also concerned about his feet. He wants to push his feet out and keep his toes curled. The physical therapist mentioned orthopedics might help. Not sure if I should be doing something else. Should I take him to see an orthopedic specialist? Is it something he will grow out of? What to do about that...I don't know. We are going to start Physical Therapy in an outpatient office on the 13th. We are going to try this twice a month. It is pricey but I feel we need to get more aggressive and I'm hoping it is short term. We are also going to have early intervention start coming to our home two or three times a month to work on P.T. too. I'm hoping to try both and cut back after a month. See which one is helping the most. It sucks doing both but I want to make sure we are doing what is best for him and I don't know any other way than to try them both to decide. The first P.T. bill came though. $70. I hope that all of them are not that expensive. All these little things add up. I am truly grateful for him and I know we are so lucky that he has not had any major issues but all these "little issues" add up and it gets overwhelming when I dread to get the mail because I know there will be some little "$100" bill for something or other. I feel guilty for being so frustrated because I know how blessed we are but it's hard and I wish it were easier. There I said it. I try to stay positive and not let things worry me that are not things I need to worry about yet but it's hard. Being a preemie mom is hard. The bills are never ending, the physical therapy, the doctor visits, the worries about development and wondering what it could mean, sometimes I just want to say AHHHHH enough already. But then I see my sweet baby boy and he looks at me and smiles with that twinkle in his eyes and his big dimples and his toothless grin and I am just so HAPPY and so thankful that he is here and in my life and making it so much better.

Monday, July 4, 2011

Birthday boy!

King's patriotic tatoo

Kingston on Tylenol! Lol!

Kingston wakin up from the anesthesia post surgery





Kingston's First Birthday

Today we celebrate the soldiers who have fought for our country and our freedom, today I also celebrate my little soldier who has fought for his life. Today is a day for celebration!

Kingston is 1 year old today and weighs 13 1/2 lbs. While that seems very small, he's gained 12 lbs in 12 months and I think that is pretty darn good! He has beat so many odds that were against him and has overcome so many hardships and battles. He is my little fighter. He has taught me so much! He is strong, loving, happy, and has the sweetest spirit! He has brought our family so much joy!

He had eye muscle surgery on Friday and it went very well. We are so blessed to live in a country with so many great resources and doctors. It was hard to see him in pain but he handled it so great. He is one tough little guy. As a parent you want to protect your baby from any pain and I would have given anything to be able to go through it for him instead of have to watch him go through it and I think that is how God feels. It would be much easier to take your childrens pain from them, then have to watch them go through it, but you know that is not possible and that this is something they must overcome and you have to watch, be supportive, be there for them, bring them comfort, and when it has passed, you realize this was something they had to go through and that they will be stronger for it. Kingston is so brave and strong and the trials he has faced and continues to face make him who he is. They are a part of him. He is such a great example to me to never give up no matter how bad things may look or how bad things may get. You have to take them one day at a time, sometimes hour by hour, but if you never lose faith and hope and continue to pray, you can get through them. God Bless America today and God bless the preemies! :)