November 20th, 2010- Our 1st surgery

Well, Kingston had his first surgery yesterday. Everything went really well. He had a feeding tube inserted into his stomach and then had his circumcision. The worst part was that he had to be re-intubated. It was hard to see him on that machine again. After the surgeries they were able to extubate him (on the second try) and so far he has been able to stay off it. They put him on high flow (a little bit of oxygen) and will continue to wean him off while he recovers. The feeding tube is a little thinner than the size of a pencil. He will have it for 8 weeks and then it will get switched out for a little button. We will continue to work with him until he can take full feeds by mouth. Once he doesn't need the tube or button anymore we will have it removed. It will be so nice to get him home. He still doesn't take a lot by mouth but he is SLOWLY improving and as he gets bigger, stronger, and more comfortable I think he will take off! Now we just have to wait for him to recover from his surgeries and then we can leave. I think today will be the worst day. He can't have as much pain medication because it affects his respiratory so he is so uncomfortable and HUNGRY. They haven't fed him since yesterday morning at 5am. I hope they start feeding him again soon. He is getting fluids but he wants milk. He also wants held and his favorite position is on his tummy but while he is healing it makes it difficult. I held him for a little bit last night but he didn't seem very comfortable. (He likes to be held up against me and patted on his back which I was unable to do)

We're hoping to still go home next week as long as he is ready. (He likes to do everything on his own time and has his own plan which rarely is the same as anyone else's plan, so we'll see) :) Love, Amber